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SUMMARY:Do We Need a Concept of Marginalisation in Bioethics? Empirical In
 sights and Conceptual Directions
DTSTART;TZID=Europe/London:20260512T103000
DTEND;TZID=Europe/London:20260512T120000
DTSTAMP:20260512T052641Z
UID:da21559e-c126-f111-88b3-7ced8d99a758
CREATED:20260323T140726Z
DESCRIPTION:Marginalisation is increasingly recognised as a determinant of
  health\, shaping inequities in access to care\, resources\, outcomes\, an
 d policy attention. Yet despite its normative significance\, its conceptua
 l status within bioethics remains underdeveloped. This talk begins by exam
 ining how marginalisation currently appears in bioethical literature\, ide
 ntifying recurring patterns of use and key conceptual gaps. To extend this
  analysis\, I conducted a qualitative interview study with informal suppor
 ters\, family members\, friends\, and others who accompany\, translate\, c
 oordinate\, and navigate when formal systems fall short. Positioned betwee
 n supported persons\, institutions\, and infrastructures\, these participa
 nts offer a distinctive entry point into how marginalisation unfolds in ev
 eryday questions surrounding health and care. Across interviews\, marginal
 isation emerges not as an exceptional event but as a routine by-product of
  institutional defaults and non-adaptive procedures that presume a narrow 
 “standard user”. When complexity arises\, through chronic illness\, la
 nguage barriers\, administrative burdens\, fragmented responsibilities\, o
 r intersecting needs\, these defaults generate frictions that can delay ca
 re\, obstruct access and intensify dependence on private support. In this 
 way\, informal support becomes existential rather than optional. Bringing 
 these empirical insights into dialogue with conceptual analysis\, the talk
  examines what these perspectives reveal about whether and how bioethics m
 ight benefit from developing a more explicit concept of marginalisation.
LAST-MODIFIED:20260323T141223Z
LOCATION:Big Data Institute\, Big Data Institute Old Road Campus  Oxford O
 xfordshire OX3 7LF United Kingdom
SPEAKER:Dr. phil. Elisabeth Langmann\, Caroline Miles Scholar
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